AIDS Clinical Trials Information Services (ACTIS)
An American Public Health Service collaborative project provided by NIAID, NLM, FDA, and CDC. It provides (toll-free) free, up-to-date information on clinical trials that evaluate experimental drugs and other therapies for adults and children with HIV infection and AIDS.
American Medical Association
“The American Medical Association (AMA) provides this resource on the Severe Acute Respiratory Syndrome (SARS) for the convenience of our physicians and the public. Appearance of a link or Web site on this page does not necessarily imply endorsement of its content by the AMA.” This website contains links to other website and journals that cover SARS. Meeting and travel information are also available.
American Sudden Infant Death Syndrome Institute
Dedicated to the prevention of Sudden Infant Death Syndrome and the promotion of infant health through research, clinical services, family support and professional and community education. Subject headings include research, Clinical Services, Upcoming Events, and Bereavement Services.
Arium
A non-profit organization dedicated to the prevention of addictions through the provision of information, resources and research concerning issues such as Fetal Alcohol Syndrome. Includes articles, FAS links and discussion forums.
Basic Information on Behcet’s Disease
A primer for patients, their family members, friends, and health care providers written by a member of the American Behcet’s Disease Association and herself a twenty-year sufferer of the disease. Offers information on the background of Behcet’s disease. The symptoms and diagnosis of Behcet’s and the emotional and physical impact of Behcet’s on daily living. Links to support groups and other Behcet’s resources.
British Columbia Centre for Disease Control (Canadian Site)
The British Columbia Centre for Disease Control (BCCDC) offers limited information on SARS, and this reflects the low incidence of that disease in the province of British Columbia. Still, this is the main website regarding SARS for citizens or travelers within British Columbia. There are a few links to other reputable sites; however most of the crucial information is listed in this document
British Columbia Fibromyalgia Society
A community based organization dedicated to providing support to people with Fibromyalgia and their families. Also promotes research, and helps to encourage early diagnosis and effective treatment. Resources include information about Fibromyalgia, a listing of associations, publications, conference summaries, and other recommended sites. Publishes the FM Forum newsletter.
Canadian AIDS Society
A national coalition of over 100 community-based AIDS organizations across Canada. Dedicated to strengthening the response to HIV/AIDS across all sectors of society, and to enriching the lives of people and communities living with HIV/AIDS. Advocate on behalf of people and communities affected by HIV/AIDS, facilitate the development of programs, services and provide resources for member groups.
Canadian Association for People Who Stutter (CAPS)
A national non-profit organization that provides coordination for a national network of Canadian self-help groups for people who stutter. Provides stuttering resources in Canada such as a listing of organizations and self-help groups and treatment programs. Additional links to general information on stuttering, articles, speech therapists and related associations.
Canadian Down Syndrome Society
Works to enhance the quality of life for individuals who have Down syndrome, through information, advocacy, and networking. Provides current information on medical, educational and social issues. Includes a message board and a directory of parent-based Down syndrome associations in Canada.
Canadian Foundation for the Study of Infant Death (Bilingual)
A federally incorporated charitable organization dedicated to finding the cause(s) of Sudden Infant Death Syndrome (SIDS), to the education of the public and to the emotional support of families who have had their babies die unexpectedly. Subject headings include Available Resources, Statistics, SIDS in the News, CFSID Chapters, and Other SIDS Sites.
Canadian Pediatric Society
Explains the syndrome. Offers the latest research on things parents can do to reduce the risk of SIDS, such as putting babies to sleep on their backs.
Canadian Pediatric Society (CPS)
The Facts about Alcohol explains how drinking alcohol during pregnancy can harm a fetus. Discusses fetal alcohol syndrome (FAS) and fetal alcohol effects (FAE).
Center for Disease Control and Prevention (Bilingual)
The Center for Disease Control is an agency of the United States Government. The CDC is dedicated to the study and control of communicable diseases. This is a very comprehensive site that offers information for SARS patients and their family members. Medical professionals will find information here on diagnostics, treatments, infection control and training programs. There is also information for living abroad, and students living away for school. Languages supported include: English, French, Chinese, Korean, Japanese, Spanish and Vietnamese.
Center for Infectious Disease, Research and Policy
The Center for Infectious Disease, Research and Policy presents this site which is provided by the School of Medicine at the University of Minnesota. This site provides the latest news on SARS. Some of the topics include Selected Readings, Suspected cases of SARS, the World Health Organization, NIAID, SARS victims, Guidelines and more links to other SARS-related sites.
CFIDS (Chronic Fatigue Immune Dysfunction Society) Association of America
The leading charitable organization dedicated to conquering chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (M.E.). Extensive information on CFIDS including answers to FAQ’s, information for family and friends, latest news, and CFIDS support groups. Extensive listing of other CFIDS resources published by individuals, by medical professionals, and by government health agencies. Includes patient support, chat groups and online networks.
David Baldwin's Trauma Information Pages
An expert in the field of trauma provides an informative site on PTSD and related topics. Includes an overview of the psychology of trauma, full-text articles on traumatic stress and its treatment, other resources and links to further information on specific aspects of trauma.
Department of Orthopedics at the University of Washington
Explains Reiter’s syndrome. Discusses the possible causes of Reiter’s, symptoms, diagnosis, treatment and the disease process. Provides links to related topics such as exercise and arthritis, diet and arthritis, and managing fatigue and pain.
Department of Orthopedics at the University of Washington
Explains the syndrome, the difference between primary and secondary Sjogren's, symptoms, diagnosis and treatment.
Down Syndrome Association of Toronto
A charitable, non-profit organization created by parents. Dedicated to promoting a positive image of persons with Down syndrome, their full integration within the community, and the availability of quality services. Provides an extensive social and information network for parents.
Down Syndrome Web Page
Contributions from experienced professionals and knowledgeable parents of Down syndrome who are subscribers to the Down Syndrome listserv and newsgroup?
Dr Marc Feldman’s Munchausen Syndrome, Factitious Disorder, & Munchausen by Proxy Page
An expert in the field provides a collection of articles on Munchausen Syndrome and other related syndromes. Includes a definition of the syndrome, case studies and a history of the syndrome.
Dr. Edward Reiman’s Chairside Consult on TMJ Disorders
An expert answers FAQ’s on TMJ involving symptoms, diagnosis, and treatment.
Endometriosis Association International
A non-profit organization dedicated to providing information and support to women and girls with endometriosis, educating the public as well as the medical community about the disease, and conducting and promoting research to endometriosis. Information on causes, symptoms, treatment options, and research is available as well as access to an EA chat room.
Endometriosis Resources Page
An endometriosis sufferer’s collection of web sites indexed by organizations, individuals, articles, and personal information pages.
Fibromyalgia Network
An advocacy group on behalf of Fibromyalgia sufferers. The page entitled Fibromyalgia Basics covers what Fibromyalgia is, symptoms, possible causes, common treatments, prognosis and self-help strategies. Other pages address diagnostic criteria, research and treatment updates, advocacy updates and other web links.
GBS.ORG
GBS.org provides information and resources about Guillain-Barre Syndrome and other related syndromes. On this site there is contact information for foundations, organizations, and support group.
Grey Bruce Health Unit – Public Health (Canadian Site)
The Grey Bruce Health Unit is a community partner and provides leadership in health protection and disease prevention. This page consists of thorough background information on SARS with evidence regarding where it has been found. Also documented is the number of human cases as well as when and where it was first detected. There are a large amount of related links to be directed to.
Guillain Barre Syndrome
This site has an overview of what Guillain Barre Syndrome is and treatment options for this disease. Also on this web site are links to other health centers and diseases related to Neurology.
Guillain Barre Syndrome Association of NSW
This site has information updates, questionnaires, and information about the association. There are also an overview for the layperson and a Guillain-Barre Syndrome guide.
Guillain Barre Syndrome Foundation International
A non-profit organization that provides support to patients of Guillan-Barre and their families, awards grants to researchers and offers education to the public and professional communities. Explains what Guillain-Barre is, diagnosis, treatment, and causes. Services available (offline) include the provision of a comprehensive booklet, GBS, An Overview for the Layperson, a listing of worldwide chapters and a newsletter.
Guillain Barre Syndrome Support Group
Guillain Barre Syndrome support group of the United Kingdom was founded to provided support and information to sufferers and their family. This web site provides information in acrobat versions. Their own journal on this syndrome can be downloaded in acrobat file and can be viewed with acrobat reader. This site also provides many links to other related web sites.
Gulf War Veteran Resource Page
A resource for Persian Gulf War Veterans. Offers information on Gulf War syndrome, answers to FAQ's, a referral network, a locator service and a place for veterans to post their Gulf War experiences.
Health and Wellness: Alberta SARS (Canadian Site)
This is a website regarding SARS for citizens or travelers to and from Alberta. Here you can find many links to other reliable websites that deal with the topic of Severe Acute Respiratory Syndrome.
Health Canada Online (Canadian Site)
Health Canada is a Canadian federal agency dedicated to protecting and preserving the health of Canadian citizens. This site includes the latest information on developments in Canada related to SARS. Actions being taken by the Canadian Government are covered here. There is a Question and Answer Section, Travel Advisories, Health Alert Notices, and other information.
Health Care Health & Safety Association of Ontario (Canadian Site)
The Health Care Health & Safety Association (HCHSA) of Ontario is a not-for-profit corporation established under the Ontario Business Corporations Act and is a "designated entity" under the Workplace Safety & Insurance Act, subject to provisions of this statute in terms of governance, funding, functions, operations and objectives. This website provides general information on SARS prevention, phone numbers to local government offices, and other information.
HealthyOntario.com (Canadian Site)
The HealthyOntario.com web site was created to offer Ontario people with a web site for trusted health information, services and advice. HealthyOntario.com is owned by the Ontario Government and operated by the Ontario Ministry of Health. This particular web page identifies the facts, causes and symptoms of SARS. Also included in the diagnosis section is the treatment and prevention of SARS.
HIV/AIDS Treatment Information Network (Bilingual)
An independent, non-profit community-based organization partially funded by the Canadian government. Provides information on the treatment options available to people living with HIV/AIDS, including drugs, other medical treatments and complementary therapies. Carries information on symptoms, diagnosis, prevention, accessibility and treatment research. Provides information about AIDS services, clinical trials and other resources.
M.E. (Myalgic Encephalomyelitis) Association of Canada
A federal non-profit corporation committed to assisting those suffering from Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, and the medical and legal professions by providing a clearinghouse of information, encouraging research, promoting public awareness and providing support services. Provides answers to FAQ's and a list of published medical articles. Publishes a monthly newsletter, The Messenger.
Manitoba: SARS Information (Canadian Site)
This website provides updates on Severe Acute Respiratory Syndrome specifically for the citizens and travelers going to and from Manitoba. This website is extremely current and gives all of the information that you need regarding this disease.
Mayo Clinic -- Guillain Barre Syndrome
Mayo Clinic is an institution that provides patient care and does medical research and education. This web page on Guillain Barre Syndrome provides general information on causes, diagnosis, and treatment of the disease.
McGill University (Canadian Site)
McGill University has an excellent reputation for its Health Sciences Programs. McGill's website offers links to many other web sites that offer information on SARS. Included are links to Main SARS Sites, SARS Journal Articles, and SARS News Sites. There are also links to SARS-focused websites in the United States and the rest of the world.
MEDLINEplus (Bilingual)
The National Library of Medicine states that it carefully selects its links to other sites. These links are directed to web sites with general information about SARS, and information about diagnostics, prevention, screening, and treatment. There are also special sections on the laws regarding SARS and the implications of SARS to Children. Spanish is fully supported, and other languages are supported with PDF files.
Multiple Chemical Sensitivity Survivors
A resource web site for Multiple Chemical Sensitivity and Environmental Illness. Extensive resources include general information, treatment, articles, books, bulletin boards, films and videos, on-line libraries, organizations, personal home pages and research.
National AIDS Clearinghouse (Bilingual)
The largest document center on HIV/AIDS in Canada. Provides information on HIV/AIDS prevention, care and support to health care workers, schools, community based organizations, and to the general public. Information on the site is organized into six main areas: Publications, Policies, Programs and Services, Interests and Issues, News, Events, and links to other HIV/AIDS sites.
National Centre for PTSD
The National Center for PTSD is a program of the U.S. Department of Veterans Affairs that carries out a broad range of activities in research, training, and public information. Information is available for veterans and their families, trauma survivors, women, clinicians and researchers.
National Digestive Diseases Clearinghouse (NIDDK) (US) - Irritable Bowel Syndrome
Headings include: What Is Irritable Bowel Syndrome? What Causes IBS? What Are the Symptoms of IBS? How Is IBS Diagnosed? How Do Diet and Stress Affect IBS? How Does a Good Diet Help IBS? Can Medicines Relieve IBS Symptoms? Is IBS Linked to Other Diseases? Additional Readings.
National Dysautonomia Research Foundation-Multiple System Atrophy Page (MSA)
Explains the disorder, clinical features, symptoms and long-term outlook.
National Institute of Arthritis and Musculoskeletal and Skin Diseases
Provides questions and answers about Raynaud's Phenomenon including what happens during an attack, how Raynaud's is identified, how it is diagnosed and what treatments (medicinal and non-medicinal) are available.
National Institute of Dental Craniofacial Research: Temporomandibular Disorders
Explains what Temporomandibular disorders are, the causes for, the signs and symptoms of, the diagnosis and treatment of, and ongoing research.
National Institute of Environmental Health Sciences
Facts about environment-related diseases and health risks. Headings include Alphabetical Listing of Environmental Health Topics, Environmental Fact Sheets and Pamphlets, Research Initiatives, Journals and Electronic Data Services, News and Events at NIEHS, and NIEHS Library Resources.
National Institute of Neurological Diseases and Stroke
Answers the questions: What is Shy-Drager Syndrome? Is there any treatment? What is the prognosis? What research is being done? Where can more information be found?
Shy-Drager (Multiple Systems Atrophy)
National Institute of Neurological Disorders
Fact sheet answers the question what is Guillain-Barre syndrome, what causes GBS, how GBS is diagnosed and how it is treated? In addition, what is the long-term outlook for those with GBS, what research is being done and where can I go for more information?
National Institute of Neurological Disorders and Stroke
A U.S. Government Agency and lead supporter of biomedical research on disorders of the brain and nervous system. Provides information on Behcet’s including treatment, prognosis, research and other links.
National Institute of Neurological Disorders and Stroke
An overview of Restless Legs Syndrome explains what it is, treatment available, prognosis, and what research is being done.
National Reye’s Syndrome Foundation
A citizens organized group committed to eradicating Reye's Syndrome. Presents the facts about Reye's including explanation of the syndrome, how to recognize it, treatment, and the link to Aspirin. Publishes a biannual newsletter.
National Tourette Syndrome Association, Inc.
Addresses what TS is, myths about TS, famous people with TS, and answers FAQ’s. Provides detailed information on the diagnosis and treatment of TS and access to published scientific information on TS.
New Brunswick: Health and Wellness (Canadian Site)
This site provides information regarding Severe Acute Respiratory Syndrome for the citizens and travelers of New Brunswick. There are links to updates, other information, and additional websites where you can locate more facts about SARS.
Newfoundland and Labrador (Canadian Site)
This website states that there have been reported Severe Acute Respiratory Syndrome cases in Newfoundland and Labrador. The website also provides some general information on SARS for citizens and travelers of Newfoundland.
North American Chronic Pain Association of Canada (NACPAC)
NACPAC is a self-help organization dedicated to providing support to people in chronic pain. Explains what chronic pain is, types of chronic pain and how NACPAC helps people with chronic pain. Provides links to specific chronic pain information, medical information references, personal pain stories, recommended pain books, and a directory of Canadian Pain Clinics and
Nova Scotia Department of Health (Canadian Site)
This website provides information regarding Severe Acute Respiratory Syndrome for the citizens and travelers of Nova Scotia. Links are provided to general information, Frequently Asked Questions, and other SARS information sites.
OASIS & MAAP
The Online Asperger Syndrome Information and Support (OASIS) center has joined with MAAP Services for Autism and Asperger Syndrome to create a single resource for families, individuals, and medical professionals who deal with the challenges of Asperger Syndrome, Autism, and Pervasive Developmental Disorder/ Not Otherwise Specified (PDD/NOS).
OMIM - National Centre for Biotechnology Information
The entry for Prader-Willi Syndrome on a database designed by the National Center for Biotechnology Information. The database is a catalog of human genes and genetic disorders. The Table of Contents for Prader-Willi Syndrome includes Description, Clinical Features, Inheritance, Diagnosis, History etc.
On-line Asperger Syndrome Information and Support (O.A.S.I.S.)
The parent of a child diagnosed with AS provides other families, educators and professionals with information on AS. Explains AS and diagnostic criteria. Provides information on managing and teaching AS sufferers. Includes Research Papers, Research Projects, Related Disorders, Support Groups and Legal Resources.
Ontario March of Dimes
Publishes articles of interest by and for polio survivors. Includes issues from 1996 onwards.
Ontario Medical Association (Canadian Site)
The Ontario Medical Association is a voluntary medical association that provides this web site. It includes links to information on the latest developments regarding SARS in Ontario. Much of the information is for healthcare professionals, but several links cover consumer health questions.
Ontario Ministry of Health and Long term Care (Canadian Site)
This site is maintained by the Government of Canada. This web page offers health information for the public on the subject of SARS. Incorporated is a history on the disease as well as important facts concerning SARS. The site focuses on how SARS can harm you. There are tips to avoid SARS and how to treat yourself if you happen to come in contact with it.
Ontario Prader-Willi Syndrome Association
A non-profit, registered charity which serves individuals with Prader-Willi Syndrome and their caregivers across Ontario. Provides information and referrals, advocacy initiatives, establishment of support groups, and education and awareness programs. Maintains a comprehensive resource center, publishes a quarterly newsletter and holds an annual conference for participants from across Canada.
PCOS.net
Network group organized by PCOS sufferers. Includes news, diets, books, diet buddies, and support.
Persian Gulf War Syndrome
A collection of material from ChronicIllnet Gulf war syndrome. Presents research and news articles, statements by government officials, and editorials on the symptoms, causes, and nature of the syndrome.
Polycystic Ovarian Syndrome Association Inc.
Non-profit organization created to promote research, understanding, and communication of the most up-to-date information concerning PCOS. Includes an explanation of what is PCOS, medical treatment, journal articles, research studies, recommended readings and links. Provides names of support group chapters in Ontario and the rest of Canada.
Prader-Willi Syndrome Association
The larger organization of which the Ontario Prader-Willi Syndrome Association is a member. Offers basic facts on the syndrome, answers to FAQ's, diagnostic criteria, genetic testing for PWS, publications and resources, personal stories and news about conferences.
Prince Edward Island (Canadian Site)
This website provides information regarding Severe Acute Respiratory Syndrome for the citizens and travelers of Prince Edward Island. Links are provided to local information regarding SARS.
Public Health Laboratory Service
The British Health Protection Agency is a government agency. The Public Health Laboratory Service website provides information that will protect the population from infection. It also provides the following: general information on SARS, daily case counts, health alert notice for travelers to or from SARS-infected countries, health alert notices for possible SARS cases, guidance for schools, colleges and universities with large numbers of students from Hong Kong and other affected SARS areas, advice for employers with staff returning from SARS infected areas, and the latest Health Protection Agency press statements.
Restless Legs Syndrome Foundation
A nonprofit agency that provides information about RLS, helps develop support groups, supports research to find better treatments, and educates physicians and patients about RLS. Addresses features of RLS, cause, age of onset, diagnosis, treatment, drug therapy, and living with RLS. Publishes a quarterly newsletter called NightWalkers.
Saskatchewan: SARS Information (Canadian Site)
This PDF file provides information regarding Severe Acute Respiratory Syndrome for citizens and travelers to and from Saskatchewan. This question and answer format provides general information about SARS which is clear and easy to read and understand. There are also a few links to other websites.
Shwachman Syndrome Canada
A new Canadian affiliate of Shwachman-Diamond Syndrome International created to link Canadian families with Shwachman's and to provide easy access to available resources. Publishes a newsletter viewable online.
Shy-Drager (Multiple Systems Atrophy)
A web forum to discuss and comment on Shy Drager (Multiple Systems Atrophy). Maintained by the Department of Neurology at Massachusetts General Hospital.
Sudden Arrhythmia Death Syndromes Foundation
Provides answers to FAQ's about SADS (also referred to as the Long QT Syndrome) including: what SADS is, causes, symptoms, who is at risk, how common the condition is, what are the genetics of the condition and how is it inherited, and how is it diagnosed and treated.
Tampax Corporation
Some basic facts on Toxic Shock syndrome. Produced by Tampax Corporation. Addresses FAQ’s, symptoms, treatment, and the link between TSS and tampon use.
The Arthritis Society
Provides a quick overview of carpal tunnel syndrome, including who gets it, common causes, signs and symptoms, diagnosis and treatments such as rest, splints, medication and surgery.
The Arthritis Society
Contains information on various types of arthritis, tips for living well, programs and resoures, research, resources for advocates, open forum community, and other additional information.
The Irritable Bowel Page
A myriad of links to personal sites, educational institutions, student health centers, associations, commercial sites, research, books, pharmaceutical sites, news groups and discussion groups.
The Lincolnshire Post-Polio Network (UK)
The site is divided into Library, Networking (including Newsletters) and Directory sections. The Library contains over one hundred full-text articles covering Post-Polio Syndrome, The Late Effects of Polio and Post-Polio Sequela. The Directory is a catalogue of other resources both on the Internet and elsewhere.
The Meniere's Page
Addresses symptoms, causes, treatments, answers to FAQ's, help with a low-salt diet and links to other web sites.
The Meniere’s Network
The Meniere's Network publishes a quarterly newsletter called "Steady". This newsletter contains articles, coping ideas and other information. A sample article and instructions for subscribing to the newsletter are available online.
The National Institute on Deafness and Other Communication Disorders (NIDCD)
Explains Meniere’s disease, including causes, symptoms, diagnosis, treatment, research being done and where additional information may be found.
The National Reye's Syndrome Foundation of the U.K.
The National Reye's Syndrome Foundation of the United Kingdom is an organization which is committed to researching and providing the most current information regarding the cause, diagnosis, treatment, cure and prevention of Reye's Syndrome and Reye-like illnesses. This site also offers additional information regarding the lasting effects, fever and aspirin, spport and various links.
The Sjogren's Syndrome Foundation
Provides practical information, and coping strategies for dealing with Sjogren's syndrome. In addition, the Foundation is a clearinghouse for medical information on the syndrome.
Toronto SARS Website (Canadian Site) (Bilingual)
Toronto Public Health provides a website with updates regarding SARS developments in the area. The site is limited to updates, but provides coverage for several languages including English, French, Chinese, Tamil, Vietnamese, Italian Portuguese, Korean, Spanish, and Russian. Also included are many fact sheets as well as hand washing techniques and disinfecting.
Tourette Syndrome Foundation of Canada (bilingual)
Provides information to individuals with Tourette syndrome including answers to FAQ’s, articles on TS, chapters of TSFC, coming events, and links to other TS sites.
UK Toxic Shock Syndrome Information Service
A commercially funded, and supported site on TSS. Addresses the facts and the history of the syndrome. Includes comprehensive information on what TSS is, how rare TSS is, risk factors, symptoms, action to take if symptoms are realized, and the link between tampon use and TSS.
Windsor Essex County Health Unit (Canadian Site)
This site is constantly updated for the purpose of informing residents of Windsor and Essex County on the status of the Severe Acute Respiratory Syndrome (SARS). Included is information on the history, nature, and prevention of SARS, as well as contact numbers for reporting cases. For additional information, the site offers links to other respected websites.
World Health Organization
The World Health Organization was established in 1948. WHO is governed by 192 Members through the World Health Assembly. The World Health Organization has created a very well-informed site that deals with the major aspects of SARS. Contained here is a fact sheet regarding SARS which is updated daily. Here you will find information on what SARS is, the virus, cases, outbreaks, studies, and statistics.
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