4 results
American Syringomyelia Alliance Project
The American Syringomyelia Alliance Project (ASAP) is a non-profit organization who’s mission is to “improve the lives of persons affected by Syringomyelia, Chiari Malformations, and related disorders while we find a cure.” The ASAP web site provides some basic information on syringomyelia, recent news relating to the disorder, information on Chiari Malformation, a question and answer section with answers provided by a doctor, information on donation and volunteer opportunities, an online store, a large number of resources on various topics relating to syringomyelia, and information for medical professionals. This is probably the best source for syringomyelia information on the web.
Canadian Syringomyelia Network
(Support Site)
The Canadian Syringomyelia Network is a non-profit organization established in Scarborough, Ontario that “offer[s] a support network to people who suffer with Syringomyelia and to all individuals interested in this disorder.” A short page of frequently asked questions is provided for a brief overview of the disorder. The majority of the rest of the material is contact info and information on upcoming events. A good site for those wishing to become affiliated with the CSN, but not useful as a source of medical information.
Syringomyelia Fact Sheet
This fact sheet is provided by the National Institute of Neurological Disorders and Stroke. It contains general information on syringomyelia including a definition, causes, the different kinds of syringomeyelia, diagnosis, treatment, research, and directions for finding further information. Great depth is not attained in this page as it is intended as a fact sheet.
Syringomyelia Facts
Syringomyelia Facts provides some basic information on syringomyelia including a definition, causes, symptoms, diagnosis, and different forms of syringomyelia. There is also contact information to request additional information from various organizations and information on studies and grants available.
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