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Ask NOAH About: Batten Disease
This page, from the New York Online Access to Health, offers a number of links which provide helpful information on Batten Disease.
Batten Disease Family Association
This British association aims "to provide a supportive, informative, networking organization for the families, careers and professionals giving care to children and adults with Batten disease." This site offers information on infantile, late infantile, juvenile, and adult Batten disease, as well as news and related links. This site also includes support functions such as a newsletter, and a guest book.
Batten Disease Support and Research Association
The Batten Disease Support and Research Association (BDSRA) aims to "be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as Batten Disease." Although the BDSRA requires a membership fee for specific services, the website offers excellent information free of charge. In addition to Batten Disease facts and fiction, the site includes the latest news, related links, a bulletin board, and chat rooms for adults, teens and children.
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