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KFS Connection Online (Chat Site) (Support Site)
This is a site people can join for support. The site requires that those who join must complete a profile of the person who has been diagnosed with KFS. The site notes that “the Members' Directory and Chat Connection foster the sharing of information and support between families or individuals with KFS”. There are also links to information resources about both KFS, as well as to other related anomalies.
NINDS Klippel Feil Syndrome Information Page
Prepared by the National Institute of Neurological Disorders, this site profiles the disorder, including information about prognosis and ongoing research. There is also a list of support organizations related to this disorder.
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