8 results
General Information about SPINA BIFIDA
This fact sheet was prepared by the National Information Center for Children and Youth with Disabilities. It defines the disorder, discusses its prevalence, characteristics and thoroughly discusses the educational implications. It also contains a reference list and organizations that relate to this disorder.
Myelomeningocele (Support Site)
The authoritative National Library of Medicine prepared this concise encyclopedia article. It contains illustrations, as well as information about prognosis, complications, treatment, symptoms and prevention.
Spina Bifida
Information on this site is supported by the National Institute of Health. There are a selection of links concerning news, general disease information, diagnosis/symptoms, disease management, research, directories, and prevention/screening.
Spina Bifida and Hydrocephalus Association of Canada
(Support Site)
This site is the Canadian Association’s web page. It has a page of Q & A’s and links to a wide range of related materials. It should be noted, however, that this website has not been updated for some time.
Spina Bifida and Hydrocephalus Association of Ontario (Support Site)
SBHAO has been around for 29 years. Its website includes material about both conditions. As well, there is a page of related links and a message board, which appears to be in the early stages of development. There is also material about SBHAO’s programs and services related to research, advocacy, awareness and care.
Spina Bifida Association of America (Support Site)
This site provides facts and medical updates, as well as an extensive list of links and related resources. There is a page that provides personal accounts from parents of children who have this disease. Through this site, it is also possible to join a listserv to get ongoing updates regarding this condition.
What is Spina Bifida?
This page of informational material is provided by the renowned Mayo Clinic’s website. There are materials concerning signs and symptoms, risks, complications, treatments, prevention and coping skills. It provides descriptions of the three different forms. It also has pictures of the spine to illustrate the condition.
Your Health: Spina Bifida
This site’s information comes from the Calgary Health Region. It provides a page of general information, which provides a good overview regarding this condition. Within the text, there are links to related items of interest, for example to material about folic acid and amniocentesis.
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