35 results
4Women.gov (Chat Site)
Women and lupus. 4Women.gov is a project of the US Department of Health and Human Services, Office on Women’s Health. It covers the subject of lupus, including topics such as pregnancy and neonatal lupus.
Aetna Intelihealth
What is lupus (systemic lupus erythematosus)? This Aetna Intelihealth site provides information explaining what lupus is, and describes symptoms, diagnosis, expected duration, prevention, treatment, when to call a professional, and prognosis of this disease. The faculty of Harvard Medical School has reviewed this medical information.
Aetna Intelihealth
Pregnancy and lupus. This Aetna Intelihealth site discusses the pregnancy cautions for women who have lupus. Although most women with lupus can have a successful pregnancy, their pregnancies are defined as high-risk. The faculty of Harvard Medical School has reviewed this medical information.
Alliance for Lupus Research
Information and Research. The Alliance for Lupus Research is a non-government agency that supports research on lupus. The site offers FAQs, or questions and answers about lupus, and an article, “The Facts, the Promise, and the Challenge of Research,” that highlights the latest information on lupus.
Arthritis Foundation
Informative. The Arthritis Foundation offers a brief, readable overview of lupus. A free lupus brochure may be requested. English and Spanish languages.
But You Don’t Look Sick
Personal “real-life” look at lupus. This site has been created by Christine Miserandino who herself has lupus. She writes easy-to-read stories, book and product reviews; and provides links to various lupus resources. The site contains active message boards. Miserandino is the author of “The Spoon Theory,” a personal story that has become popular in the lupus community.
Calgary Health Region
Lupus and Sexuality. The Calgary Health Region has created a list of sexual and reproductive issues for people with arthritis and other connective tissue disorders, such as lupus. Special implications for males and female are noted. Suggestions are offered for dealing with decreased range of motion and pain management.
Cyndee Miller’s Lupus Home Page
Lupus support, awareness and a personal story. Cyndee’s site is dedicated to lupus awareness. She has personally lived with lupus for nearly 40 years. Cyndee shares her own story and provides links to many lupus-related resources, including tips for new lupus patients.
Hamline University Lupus Home Page
Informative. A broad scope of information can be accessed from the Lupus Home Page provided by Hamline University, St. Paul, MN, much of which is international. The page features a personal photographic journal by Ross Sonnenburg, a lupus sufferer. English and Spanish languages.
Hardin MD
Medical pictures. Hardin MD is a service of the University of Iowa. It provides medical pictures of lupus as well as links to other online lupus resources.
HealingWell.com
Lupus resource center. HealingWell.com offers current news articles about lupus, information about new books on lupus, links to other online lupus resources, and access to selected lupus forums and chat group discussions. As with any online discussion group, care should be taken to not post personal contact information. This site conforms to HONcode principals.
Healthy Ontario.com
Overview of Lupus. The HealthyOntario site gives an overview of lupus, with facts, causes, symptoms, diagnosis, and treatment. A list of lupus community resources throughout the province is provided. The site features “Ask a Nurse,” whereby a registered nurse can be telephoned to answer health questions. You can find general health resources as well, such as Health Tools and Health Experts on such topics as diet and stress management. This site requires a condition agreement in order to proceed (instructing people they should to see their physicians for specific health advice). English and French languages.
Henry Ford Health System
Overview of Lupus. The site at the Henry Ford Health System gives a brief overview of lupus. The site also contains a health encyclopedia, information on prescriptions, and an interactive Body Guide to learn more about the structure of the body. English and Spanish languages.
Hospital for Special Surgery
Orthopedics and rheumatology. The Hospital for Special Surgery, New York, NY, created a site with over 600 articles and videos for patients and medical professionals, including information on lupus. Material is divided into various sections: Complications and secondary illness, mind-body issues, HSS support services, etc. Support services include chat rooms and a special focus on teens. English and Spanish languages.
KidsHealth for Kids
Children with lupus. The KidsHealth site gives an overview of lupus that young people can understand, and provides links to a selection of youth appropriate articles. It also has sections dealing with such topics as feelings, kids’ health problems, the game closet, etc. English and Spanish languages.
Lupus
Moderated listserve group. Lupus offers 8 discussion groups that cover topics related to lupus such as medical, news, coping, emotional health, fun (jokes, funny stories), and a bulletin board for social and personal postings. Subscription is free. The purpose of the list is to provide a means for open communication with responsibility. As with any online discussion group, care should be taken to not post personal contact information.
Lupus Canada
Informative. The Lupus Canada site provides a brief introduction to lupus, covering what it is, who gets it, cause, symptoms, treatment, and what its like to live with. More in-depth information is available in the article, “Lupus: The Disease with 1000 Faces.” Additional articles, an immune system primer, and contact information for Canadian lupus organizations are also available on the site. English and French languages.
Lupus Canada
Canadian lupus organizations. This site provides links to Canadian lupus organizations located throughout Canada. English and French languages.
Lupus Multiplex Registry & Repository
Genetic studies. The Oklahoma Medical Research Foundation is conducting a long-term genetic research project with families that have two or family members diagnosed with lupus. Information on participating in the study is available. English and Spanish languages.
Lupus Ontario
Informative. In addition to educational information about lupus, the Lupus Ontario site provides links to Ontario-based clinics, research, and support groups.
Mayo Clinic
Lupus overview. The Mayo Clinic Staff provide an overview of lupus that includes signs and symptoms, risk factors, complications, and self-care strategies.
Mayo Clinic - Living with Lupus
Personal Story. This is the case story of an individual who coped with kidney failure as a result of lupus, and how she learned to live with a chronic medical condition.
MedicineNet.com
Lupus overview. MedicineNet.com provides information about lupus, including how to avoid disease activity (flares) and the future of patients with lupus. Doctor’s views on lupus and news updates are contained within the site.
MedlinePlus
Lupus overview. The MedlinePlus site provides comprehensive information about lupus, with articles on disease management, statistics, nutrition, and more. “Easy to Read” articles and “Interactive Tutorials” are noted. MedlinePlus is a service of the US Library of Medicine and the National Institutes of Health. English and Spanish languages.
Merck Manual of Medical Information
Lupus overview. This site is compiled from the most widely used textbook of medicine written in everyday language, the Merck Manual, which takes pride in being complete, concise, and correct. It provides a brief chapter article on lupus, including a photograph of the “butterfly” rash. An index is included that directs readers to every location in the Merck Manual that mentions lupus.
NetWellness; Consumer Health Information
Lupus overview. Basis information on lupus is provided and a link to “More About This Topic.” NetWellness, a non-profit consumer health web site, provides material evaluated by the medical and health faculty at University of Cincinnati, Case Western Reserve University, and the Ohio State University.
New York Online Access to Health (NOAH)
Children with lupus. NOAH provides links to articles about lupus and children. English and Spanish languages.
New York Online Access to Health (NOAH)
Flares and lupus. NOAH provides links articles about lupus flares. English and Spanish languages.
New York Online Access to Health (NOAH)
Kidney disease and lupus. NOAH provides links to articles about nephritis, or kidney disease, and lupus. English and Spanish languages.
New York Online Access to Health (NOAH)
Men and Lupus. NOAH provides links to articles about men with lupus. English and Spanish languages.
The Arthritis Society
Lupus information. The Arthritis Society provides links to articles about lupus. English and French languages.
The Lupus Foundation of America
Informative. The Lupus Foundation of America (LFA) is the nation's leading non-profit voluntary health organization dedicated to finding the causes and cure for lupus. The LFA site offers educational information on the different kinds of lupus and provides links to further resources, including state and local LFA Chapters.
The Lupus Foundation of Canada
Informative. In addition to educational information about lupus, helpful telephone numbers can be found at the Lupus Foundation of Canada site. There is a special section on World Lupus Day.
WebMDHealth
Lupus health center. WebMDHealth provides in-depth coverage of lupus, related recent news stories, and online support groups. Sometimes a Live Event, an open chatroom with an expert, is scheduled. Transcripts of previous lupus-related Live Events are posted. This site does advertise some commercial interests, but conforms to HONcode principals.
Your HealthConnection; tools for a healthy lifestyle
Informative. Your Health Connection offers a medical review on lupus, written by a physician belonging to Consumer Health Interactives’s medical advisory board, made up of top physicians and clinicians. The site also includes “Cool Tools” such as a health assessment, a symptom checker, and a daily nutrition calculator. This is an award-winning site. It conforms to HONcode principals.
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