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For Parents of Preemies
This is an excellent site for all aspects of premature infant education. This site is developed by Jane E. Brazy, MD who is a Neonatologist. It is filled with easy to understand information on both physical and emotional aspects of premature infant issues. The medical portion of this site includes an overview of the following common problems and diseases associated with preemies: Jaundice, Apnea, Bradycardia, Breastfeeding, Anemia, Low Blood Pressure, Blood Sugar, Respiratory Distress Syndrome, Transient Tachypnea, Patent Ductus Arteriosis, Retinopathy, Infection, Pneumothorax/Pneumomediastinum/Pulmonary Interstitial Emphysema, Necrotizing Enterocolitis, Reflux, Hernia and Hydroceles, Preventricular Leukomalacia, Intraventricular Hemorrhage, and Bronchopulmonary Dysplasia. The site also offers commonly used drug information in easy to understand format. There is also support information for mothers with diabetes, increased blood pressure or pre-eclampsia, and intrauterine growth retardation preemies. The site also includes general information such as development of preemies and how parents can help (kangarooing), emotion responses of parents, stages of adaptation, chances of survival and disability, preparing for discharge (newborn care) and much, much more.
Preemie-L FAQ and advice sheets
This is a compilation of articles dealing with different aspects of the premature infant experience. The site includes an in-depth page on Respiratory Syncytial Virus (RSV). Some of the topics discussed pertaining to this virus include: what it is, how is it treated, vaccines available, what is RSV immunoglobulin (RSVIG), how well does RSVIG work, what are the risks for being hospitalized for RSV, eligibility for RSVIG treatment, why and where is it given, side effects, cost, when to start, deciding factors, and other treatment for other respiratory problems. There is also a link provided to premature infant information that discusses survival statistics, handicap chances, feeding problems, Respiratory Distress Syndrome, Apnea, Anemia, Patent Ductus Arteriosis, Intraventricular hemorrhage, infection/sepsis, and Retinopathy. The site also includes general information such as how to increase breast milk supply, best way to store/freeze/thaw milk, what to do if baby is said to fail to thrive, suckling problems and other issues surrounding the complicated task of breastfeeding a premature infant. The site also offers advice on what to do after NICU, how to help your baby progress when still at the NICU (kangaroo care), sibling support, personal stories and much more. The site also offers recommended reading materials and related site links to more in-depth discussion in each of the areas discussed.
Premature Child-Support for the long-term effects of prematurity (Support Site)
This site deals with the many issues surrounding premature children development and the complications they might have to overcome. Some special needs that are addressed include: asthma, allergies, cerebral palsy, motor delays, constipation, growing and feeding, loss of your child, reflux, scars, seizures, vision impairments and dental problems. The site also offers articles such as “Surviving NICU”, and “What every parents needs to know about NICU” and much more. The site also offers support information such as on-line discussion boards on the effects of prematurity, email support list, personal stories and advice and chat rooms. The site features a search engine and many links for ease of accessing information within the site as well as the rest of the web.
Premature Infant Overview
This is an excellent site filled with premature infant information from an on-line encyclopedia. It includes comprehensive full text as well as full-color diagrams to augment the material discussed. This site offers alternative names and definitions of premature infants as well as a search engine to search for additional information. Some of the topics covered pertaining to contributing factors of premature infants include: preeclampsia (definition, causes, incidence, risk factors, symptoms, how to test for each symptom, how to prepare for test, how test will feel, why test is performed), High blood pressure (considerations, common causes, treatment), Protein in urine, kidney disease, diabetes, heart disease. The site also includes contraceptive information, and a pregnancy overview of the development of the fetus. The complications associated with pregnancy that are discussed include: Respiratory Distress Syndrome, Retinopathy, Bronchopulmonary Dysplasia, Heart Disease, Necrotizing Entocolitis, Jaundice, Anemia, Low blood glucose (sugar), central nervous system immaturity problems (absent breathing, bleeding, Gastrointestinal problems), and delayed growth. This site also offers in-depth information on the tests involved with pre-term infants. These include chest x-ray, blood gas, serum glucose, serum calcium, serum bilirubin, euglogulin lysis time. The site also includes an overview of the diagnostic criteria for premature infants. This includes: Low birth weight, irregular breathing patterns, Feeding problems, Physical characteristics, and low temperature.
Premature Infant-General Health Encyclopedia
This is an informative site which deals general information about premature infants. The site covers alternative names, definitions, causes, incidence, risk factors, prevention and characteristics of premature infants. The site also discusses the different treatments and tests the newborn might have to undergo such as chest x-ray, blood gasses, serum calcium, serum billirubin, euglobulin lysis time, IV, and Respiratory treatments. The site also covers the following complications: Hyaline Membrane disease, Retinopathy of Prematurity, Bronchopulmonary Dysplasia, Heart disease, Necrotizing Enterocolitis, Jaundice, Anemia, Low Blood glucose, and Delayed Growth.
T-Bone’s Survival Tips for New Preemie Parents
This site offers general information written by parents for anyone who has been touched by a preemie birth. The information for parents addresses topics such as: Those special first visits, How to touch a preemie, Leaving hospital without your baby, Dealing with setbacks, Asking questions, Taking care of yourself, Pumping and Breastfeeding, Emotions and Feelings, Depression, How your family and friends cope, Marriage adjustments and the Preemie Dad. The site also offers information for those supporting preemie parents. This section talks about ways of understanding the preemie parents and some tips on how to help preemie parents cope. The site also talks about special circumstances such as single preemie motherhood, facing surgery in NICU, multiples, facing loss, and many other issues that preemie parents might come across. The site is quite detailed in explaining the types of emotions the parents might go through so as to create a sense of understanding of the psychosocial aspects of dealing with premature infant birth. The site also covers the some aspects the family might go through once they bring the baby home such as isolation and the many adjustments that need to be made. The site is filled with therapeutic encouragement such as inspirational poems and stories.
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